Updated 07/31/15
MORNING:
1) 3/4 1 grain tablet of Nature Throid.
Wait 30 minutes, then take…
2) 1 5 drops of A-L Complex by Byron White in 3 tsp of water
Wait 30 minutes, eat breakfast, then take:
3) 500mg of Flagyl once twice/day on Wednesdays and Thursdays.
4) 3mg Ivermectin on Sundays beginning with one tablet and working up to 4.
5) Mito Synergy’s Mito Lipo chelated copper, 1/2 tsp daily for mitochondrial support and work up to 1 tsp.
6) Hepa buy soma online us to us Plus, 2 capsules for liver support
7) OPC-C Vitamin C, 2 capsules for adrenal and antioxidant support
8) Lipo-Spheric Vitamin C, 1 packet for adrenal and antioxidant support
9) Ashwagandha tincture, 9 drops twice a day a working up to 15 drops twice a day for adrenal support.
10) Interphase Plus, taking 1 capsule/day to break up biofilms
11) HydroxyB12, taking 2,000 3,000mcg daily
12) Methylfolate, 400mcg/day
13) B6 in the form of P-5-P, 50 100mg/day
14) Sunflower Lecithin, taking 1 soft gel daily.
15) Pinella, 4-10 drops as need throughout the day to cleanse the brain and nervous system of neurotoxins and ammonia
16) 6,000 IU of Vitamin D per day
17) Vitamin K2, 1 drop per day
18) Bio-identical testosterone from a compounded pharmacy, 1 pump per day
NOON:
19) 5 drops of A-Bart by Byron White in 3 tsp of water
20) 100 mg of Minocycline on an empty stomach
21) 500mg Azithromycin
Wait 30 minutes, eat lunch, then take:
22) OPC-C Vitamin C, 2 capsules
23) Lipo-Spheric Vitamin C
24) Ashwagandha tincture, 9 drops.
25) Hepa Plus, 2 capsules
26) Pinella, 4-10 drops as need throughout to the day
DINNER:
27) 5 drops of A-L Complex in water. Wait 20 minutes, then take:
28) 5 drop of A-Bart in water. Wait 30 minutes, then take:
29) 100mg of minocycline
30) 500mg of Flagyl twice/day on Wednesdays and Thursdays. Wait 30 minutes, the have dinner.
THREE HOURS AFTER MY LAST ANTIBIOTIC OF THE NIGHT:
31) 3Tbs of Bravo/GcMAF Probiotic. Currently working up 4 Tbs.
What is Bravo: https://gcmaf.se/gcmaf-products/bravo-probiotic/
What is GcMAF: https://gcmaf.se/gcmaf-products/gcmaf/
Nagalase Levels: https://gcmaf.se/patient-resources/nagalase-blood-test/
How GcMaf Works: https://gcmaf.se/gcmaf-science/how-gcmaf-works/
My Nagalase levels as of April 23rd, 2015: 2.4
BEDTIME:
32) 100 mg of phosphatidylserine, helps reduce nighttime cortisol levels.
33) Clonazepam, 1.00-1.25mg nightly to decrease excitotoxicty and neuro symptoms in my brain. Also assists with sleep.
34) Soma, 350 mg twice per night. This medication is a muscle relaxer but has a side effect of drowsiness so it assists with sleep. I have found it virtually useless as a pain medication.
35) Gaba, 1,500 mg twice per night to help me relax and sleep.
36) 5 HTP, 100 twice per night, assists with sleep and mood.
37) Melatonin, 3mg twice per night to help fall asleep.
38) Magnesium Glycinate, 400mg once per night for relaxation and muscle pain.
39) Renew Life Probiotic, 50 billion
40) Saccharomyces Boulardii (beneficial yeast), 9 billion
41) Progesterone, 100mg suppositories used on day 14-27 of my cycle.
This is my current treatment protocol. However, it is constantly evolving based on new information, test results, side effects, negative reactions etc.
WE ARE SO SIMILAR
I am always happy to meet feel Lyme Fighters, but saddened that there are so many of us going through this.
Hi
I’m suffering with lots of neuro symptoms from
Lyme and co infections. Have g.i. Issues making it difficult to take meds. Your treatment sounds so holistic. Could u please give me name of your Nurse Practitioner?does she do phone consults?
Hi Stacey,
I will email you the info.
Could you please email me your doctors details too?
Are you working with Ruth Kriz?
I am sorry for what you are going through. But Personally, I would be ditching any pharmaceutical drugs – including antibiotics. There is always unwanted side effects, and very often inadvertently puts another stress on your immune system. It’s clear by what you are saying that u have already “overburdened” your system with antibiotics, and this is going to do 2 negative things to you: 1. destroy your natural immunity/gut bacteria, and 2. allow the bacteria in your body to mutate and become resistance to that antibiotic through frequent use. Antibiotics are only meant as last stop measures. Try to find natural alternatives. Pharmaceuticals are banking on your remaining sick. I think a lot of those drugs are not needed, and are doing more harm. Was nagalese detected in your blood?
Thanks for the comment! Sounds like you are doing well, yes? I haven’t updated this treatment plan for almost a year, so it’s not current atm. I would never “ditch” anything that potentially can be life-saving and helpful to Lyme patients given that we are all so different and our access to treatment resources varies greatly. My choice to use antibiotics was the last measure after there were insufficient herbal protocols to treat secondary infections that I likely picked up while working at a hospital in the Dominican Republic many years ago. I’m very glad to hear you’ve found things that have helped you too. Yes, I did have elevated nagalase levels in 2015. You?
Hi,
I found this blog. I too suffer from Lyme and it is starting to really depress me. I also have fatigue and lately I am getting lightheaded along with vertigo. Typically, it comes in migraines and joint pain. I have two little kids and a career, so this is getting very upsetting. I have done everything from the holistic approach to the more traditional approaches. Where I live many doctors do not believe in Lyme and want to treat for other issues, even though I tested positive. This has been horrible and I am looking for any type of relief. Any suggestions are welcomed on how to overcome these horrible symptoms.
I’m so sorry you are going through this, Heather. Where I live, doctors also don’t believe in Lyme, so I work with a practitioner out-of-state. Is that an option for you? I wasn’t getting anywhere with local practitioners, so I had to make the difficult decision to go elsewhere. Now, I just use regular doctors for less complicated things and annual exams.
Unfortunately, I am also a late-stage chronic lyme disease suffer. I was first diagnosed with multiple sclerosis in December of 2015 and started treatment with rebif shortly after. After becoming very ill, unknowingly from the rebif of injections, I sought a second opinion with another multiple sclerosis neurologist at UAB in Birmingham Alabama. Lyme disease never once crossed my mind. He looked at my MRI, which shows 22 lesions, poked and prodded with two other doctors for over an hour and a half. He then tells me that my lesions are not located in the typical regions of the brain that Ms lesions usually are. He asked if I had ever been tested for Lyme disease. Of course I said no because it had never crossed my mind. He tested me couple of weeks later got the test results back and I tested positive for four bands of Lyme. I was sent to an infectious diseases doctor in Huntsville Alabama which is closer to where I live. On the day I saw her, she wanted me to have a PICC line inserted and start a 4 weeks round of 5 mg a day Rocephin with Home Health care. After going through hoops with the insurance company that day on the phone with the doctor and the insurance company on the conference call in order to get the procedure and medications and Home Health approved, I had to wait and later the next week had the PICC line inserted and started treatment. I have bipolar disorder, chronic fatigue syndrome, trigeminal neuralgia and ADHD.
During my 4 weeks of treatment with the PICC line I felt better than I have in a long time, even my depression improved.
Jump forward to the end of my treatment when I have the PICC line removed and I go back to the doctor. After telling me my first visit with her that I would always have Lyme disease because it was chronic late-stage, I estimated I had had it for approximately 12 to 14 years, the doctor Prestige to tell me that I am now “CURED!”
Now let me just say that I am a very outspoken person and this did not sit well with me. I reminded her that she had told me that I would always have Lyme disease and she proceeded to argue with me. So I demanded another blood test. she did it and of course I tested obviously because I had just been on 5 grams of Rocephin for 4 weeks!!
Of course I have done intensive research on Lyme disease and have started taking herbal supplements and trying to manage this horrible disease on my own since April of 2017.
Now I’m at a point to where I am having Vision difficulties, hearing difficulties, the brain fog and cognitive function issues came back almost immediately after having stopped the antibiotic treatment. I have joint pain, memory loss, Bell’s palsy, leg tremors and times when it seems as if I “blackout”, and I lose gaps of time during those periods. And I don’t remember what I was doing or even if I was just standing there or sitting there staring off into space!?
I do have a service dog that gives me great support. He seems to know when I’m going to have a bad day before I do. He is my biggest supporter! Not only emotionally and physically but literally! He is a Great Dane and will be 2 next week and weighs almost 175 lb which is more than 50 lb than I do! He helps me from falling and helps me up when I do!!
I am at a point to where I am very discouraged about finding a doctor that can help me. I live in North Alabama and it’s a minimum of a two-hour drive in any direction to find a doctor that knows at least normal amount about Lyme disease.
Any advice from anybody would be greatly appreciated. And if anyone could suggest a Lyme literate doctor within a few hours drive of North Alabama that would be great! I am unsure of how my insurance is going to handle a new doctor to treat Lyme since I tested negative after the PICC line treatment.
My prayers go out to all of you who are suffering from this horrible illness and I pray that one day we will all be better!!!
There are no support groups in my area. So feel free to contact me if you would like.
I found your article about Dr Frid and was so pleased to see it was written by an occupational therapist. I am an OT nearly a generation ahead of you. I have congenital Lyme and have just had to stop practicing. I have such feelings of loss over giving up my day-to-day patient care. It’s wonderful to see your holistic OT brain impact the Lyme world. I am looking forward to seeing you in my inbox thank you for your contributions
Thank you, Patricia. I really appreciate your comment. I’m sorry you had to give up your passion due to Lyme—I certainly know what a loss that feels like.