It’s been a few weeks since I have written anything new regarding my treatment or my journey to wellness. Often times when a chronically ill blogger is not posting, it’s because he or she is not feeling well. Although I have had many ups and downs over the last few weeks, in this case, my reason for not blogging is a good one. In fact, I have been busy.
Yep. That’s right. Me, the person who is still homebound most of the time, can’t socialize often or am too fatigued to clean my house for that matter, has been busy!
“Busy doing what?” you may ask.
I, along with two, wonderful fellow Lyme fighters, have been busy starting the very first Lyme Disease Support Group in the city of Chicago. We have been hunting, searching and calling around for a space for nearly two months. Our initial location fell through when it was determined that the space had way too high of a mold count. No HERMI test required. My co-leader’s watery eyes and loss of voice, along with the choking feeling in my chest coupled with continuous coughing was all that we needed to confirm that the cute, little church on the corner was definitely not going to work for our needs. The search continued.
Call after call finally landed us a nice conference room in a new building affiliated with a neighborhood hospital. We had found our venue.
We created our online Facebook forum, set up our google+ account and email address. We have also been working on coordinating community resources for our members and creating an agenda for our first meeting in August. I am so excited to finally have a meeting place to gather with my fellow Lymies, many of whom I have only talked with online and have not yet had an opportunity to meet them person.
This is a big step for me, and the other two leaders, to move into the role of a support group leader. I still have a lot of healing to do before I feel well, but meeting in a supportive environment with like-minded individuals will certainly contribute positively to the healing process.
A year ago, I was still bedridden. Now, I am taking a giant leap forward believing that it will not cause me to go backwards, but bring me out of what has been a very isolating season in my life. Cheers to moving forward, taking risks and starting a support group with friends!
If you are a support group leader or are thinking about starting one, I would love to hear about some of your experiences. Please feel free to post a comment!
In the next few weeks, I will be writing my 8 month update and my experience with the Zyto Scan (still on the fence about that one).