One week ago, May 22nd and 23rd, several Lyme fighters and Lyme Disease supporters gathered at the headquarters of the IDSA in Arlington, VA for the fourth annual Mayday Project protest. Those of us not able to attend the protest in-person were able to participate by faxing, emailing and using social media to deliver a 24 page document to the IDSA suggesting that they redefine the guidelines for the diagnosis and treatment of Lyme Disease. To see the document in it’s entirety, click here.
Our mission was to persuade the IDSA to “accept persistent Lyme disease as a diagnosis” (The Mayday Project, facebook.com, 23 May 2014. Web. 23 May 2014).
The Mayday Project further states “This will open the door for people to do research into the chronic form of the disease and hopefully produce a cure. This is what we ultimately want” (facebook.com, 23 May 2014. Web. 23 May 2014).
Fox 5 DC came to cover the event and has since produced two great segments on the devastating effects of chronic Lyme Disease and the controversial methods of transmission for this illness. Please click on the following links below to watch the videos.
I am so grateful to The Mayday Project, the people who attended this year’s protest and to those who helped to advance the cause of Lyme Disease (many while seriously ill) by contacting the IDSA through various forms of communication. It’s seems our voices are beginning to be heard and I hope and pray that our illness will finally be recognized and patient’s will have faster, better access to appropriate medical care. Perhaps next year I will be in better health and able to participate in the protests in-person. Between the local and national protests, this year’s Lyme Disease Awareness Month was a great success.